9th IACB Colloquium, Quebec City, Canada, June 16-21, 2019

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Consensus statement and papers

Consensus statement

Promoting capabilities to make healthcare decisions

National Catholic Bioethics Quarterly, Summer 2020, vol. 20, no. 2, pages 355 - 371, 2020.

William F. Sullivan, John Heng

Jos V. M. Welie

Promoting healthcare decision making and the inherent dignity of patients

Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 767-774.

Patient agency, autonomy and consent. Catholic perspectives.

Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 767-774.

William F. Sullivan, John Heng, Michael Bach

Supported decision making: A new approach to promoting decision-making capabilities in health care of adults with intellectual and developmental disabilities or progressive neuro-cognitive impairments

In: Ishita Khemka and Linda Hickson, eds., Decision Making in Individuals with Intellectual and Developmental Disabilities: Research and Practice. New York: Springer, chapter 17 (in press).

Abstract

Supported decision making approaches in health care recognize the authority of patients to decide on treatment options with the help of close and trusted persons as needed. This paper (a) elaborates on supported decision making in health care, (b) discusses some possible philosophical and ethical underpinnings of this approach, and (c) concludes that a supported decision-making approach affirms the inherent dignity of patients with intellectual and developmental disabilities or progressive neuro-cognitive impairments, will enhance their participating in making healthcare decisions with supports as needed, and can enable their authority to make those decisions to be ethically and legally recognized.

Julian C. Hughes

Sander P. K. Welie

Kay Wilhelm

Decision making in mental health care: the caregiver’s role

Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 975-992.

Marie-Jo Thiel

Paulina Taboada

A life for Bioethics. Tribute to the late Elio Cardinal Sgreccia.

Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 789-801.

Christian Domenic Elia

 
Informative Interview

Videos/ Podcasts

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                  Audrey Cole                  Michael Bach

       Advocate                    Disability Policy Consultant

video    podcast

 

Clinical Tools

These tools were developed for healthcare professionals by the Developmental Disabilities Primary Care Program at Surrey Place, Toronto, Canada. They promote decisional capabilities of adults with intellectual and developmental disabilities through supported decision making. They might be helpful for other patients with similar challenges of impaired decision making.

 

ASSESSMENT

Link

ASSESSMENT

Promoting Safety

Coming Soon

ADVANCE CARE PLANNING