9th IACB Colloquium, Quebec City, Canada, June 16-21, 2019
Consensus statement and papers
Consensus statement
Promoting capabilities to make healthcare decisions
National Catholic Bioethics Quarterly, Summer 2020, vol. 20, no. 2, pages 355 - 371, 2020.
William F. Sullivan, John Heng
Jos V. M. Welie
Promoting healthcare decision making and the inherent dignity of patients
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 767-774.
Patient agency, autonomy and consent. Catholic perspectives.
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 767-774.
William F. Sullivan, John Heng, Michael Bach
Supported decision making: A new approach to promoting decision-making capabilities in health care of adults with intellectual and developmental disabilities or progressive neuro-cognitive impairments
In: Ishita Khemka and Linda Hickson, eds., Decision Making in Individuals with Intellectual and Developmental Disabilities: Research and Practice. New York: Springer, chapter 17 (in press).
Abstract
Supported decision making approaches in health care recognize the authority of patients to decide on treatment options with the help of close and trusted persons as needed. This paper (a) elaborates on supported decision making in health care, (b) discusses some possible philosophical and ethical underpinnings of this approach, and (c) concludes that a supported decision-making approach affirms the inherent dignity of patients with intellectual and developmental disabilities or progressive neuro-cognitive impairments, will enhance their participating in making healthcare decisions with supports as needed, and can enable their authority to make those decisions to be ethically and legally recognized.
Julian C. Hughes
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 941-954.
Sander P. K. Welie
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 903-923.
Kay Wilhelm
Decision making in mental health care: the caregiver’s role
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 975-992.
Marie-Jo Thiel
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 1019-1041.
Paulina Taboada
A life for Bioethics. Tribute to the late Elio Cardinal Sgreccia.
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 789-801.
Christian Domenic Elia
Medicina y Ética, Oct.-Dec. 2020, vol. 31, no. 4, pages 1057-1068.
Videos/ Podcasts
Clinical Tools
These tools were developed for healthcare professionals by the Developmental Disabilities Primary Care Program at Surrey Place, Toronto, Canada. They promote decisional capabilities of adults with intellectual and developmental disabilities through supported decision making. They might be helpful for other patients with similar challenges of impaired decision making.
